Meet Harrison: A Story of Strength, Spirit, and Determination

Born in 2010, Harrison is an extraordinary boy with a heart full of resilience and a spirit that never quits. Born with a very rare neuromuscular condition called Congenital Myasthenic Syndrome (CMS), Harrison has faced more medical challenges in his young life than most will in a lifetime. CMS, a rare disorder falling under the umbrella of Muscular Dystrophy, is non-degenerative but lifelong. It affects communication between nerves and muscles, impacting muscle strength and control throughout the body.

For Harrison, the most affected are his bulbar muscles, those responsible for critical functions like eating and breathing. Since birth, he’s been under the care of numerous specialists across the state and has worked hard in physical, occupational, speech, and feeding therapies to support his development and daily function.

Despite these challenges, Harrison greets life with determination, humor, and joy. His positive outlook is infectious. Whether he’s cracking jokes, jamming on the drums, or simply spending time with the people he loves, Harrison brings light to every room he enters.

He’s deeply connected to his community and passions. He loves hanging out with friends and family, participating in youth groups at his home church and has been a proud member of his karate studio for many years. Music is another one of his passions - he plays drums in several bands and finds joy in rhythm and creativity.

Harrison's journey is a powerful reminder of what it means to live courageously. He doesn't let his condition define him—instead, he defines what it means to live fully, love deeply, and laugh often.