Meet Mackenzie!

Growing Stronger Every Day

Mackenzie is a sweet and determined teenager who has been showing the world her strength since day one. From the start she had difficultly with feeding, severe reflux, frequent ear infections, low muscle tone, and difficulty gaining weight. As she grew, her family noticed she was missing developmental milestones and began searching for answers.

After countless doctor visits, Mackenzie was diagnosed with Tetrasomy 18p, a rare genetic disorder that affects her physical and cognitive development. She experiences low muscle tone, scoliosis, torticollis, and challenges with balance, coordination, and communication. She has worked incredibly hard to reach milestones in her own time.

Today, Mackenzie can walk and run, but she remains unsteady and falls easily. She continues to receive physical, occupational, and speech therapy to help her build strength and confidence. One thing is certain, Mackenzie never stops growing and surprising the people who love her!